Happy Crohn's and Colitis Awareness Week. Most of you know way too much about Crohn's and Colitis. You know it sometimes can be a literal pain in the ass.
In case you don't know about Crohn's or you are new to it...the CCFA is the place to learn more. They have information, news, and resources.
Crohn's & Me is a great place to go if you are focussing on the pain in the ass part and need a bit of inspiration.It has all sorts of stories on people living and thriving with Crohn's disease. People with Crohn's and UC have guts for sure. They get up, they work, they raise families, they do amazing things every day.
Cures are in the works. Treatments get better all the time. But of course, all of that takes time, patience, and money. Awareness helps get that money. Because Crohn's and Colitis are digestive diseases...no one wants to talk about them. Your co-worker, friend, idol, or family member might have it and never talk about it. You might never talk about it. So, take a moment to talk about it. Talk to your lawmakers, grant foundations, friends and family.
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Dear Tummy Troubles,
HAHA... cures and treatments sure do cost $$ which is why I’m writing to you today. The IBS Self-Help and Support Group has joined the Revolution Health Fair, (http://www.revolutionhealth.com/healthfair) an online event launched in partnership with 10 national nonprofit organizations who each host a virtual “booth.”
Until the end of June, for every visitor to a partner organization’s booth Revolution Health will make a donation to that partner for a total of up to $10,000.
I also hope you’ll let your readers know about this. They’ll get valuable information and help the groups who advocate for them to prosper.
If you have any questions, please contact me at greg@echoditto.com. I hope you can find time to participate, but keep up the good work.
- Greg Cooper, on behalf on Revolution Health
ABOUT REVOLUTION HEALTH:
Revolution Health (http://www.revolutionhealth.com) is the new health resource website founded by Steve Case, partly because of the difficulties he and his family faced during his brother’s battle with brain cancer. He wants to make it a bit easier for those who follow by providing tools to support both patient and family. I’m working with Revolution to support the work of bloggers who follow health issues. One way we’re doing that is by conducting these topical briefings, just for the blogger universe. Revolution wants to highlight its ability to aggregate and share critical information on health issues by providing new information and contact with health leaders in relevant disease communities.
One great asset of the site is its population of experts, including those on nutrition, diet and weight loss, drawn from major academic institutions across the country, including Columbia, Harvard, Cleveland Clinic, the University of California at San Francisco, the University of Southern California, Johns Hopkins, Memorial Sloan Kettering, MD Anderson, and more
Any support for the CCFA? Or another Crohn's/Colitis specific organization? I didn't see it when I looked last week...but I did think the health fair was WAY cool.
This is Carly from i like blue
I submitted a story to the local paper on this angle recently. After over 15 years of having Crohn's I finally decided to rally and collect money for the CCFA walk in my area. This was my first year and I managed to raise nearly $3,000 with my parents and brother as my only team mates.
I go to the bathroom about once an hour, and it's normally uncontrollable. I've been on nearly every medication, Humira... etc. Even my doctor does not want to hear about me having to poop on the side of a busy highway in rush-hour. But nothing is helping and I'm determined, finally, to stop being so silent about what I am going through. At least if I can't get any help, them maybe eventually there will be a cure to prevent other people from dealing with this stuff!
Thank you for visiting and commenting on my post. We have a lot of reading and research to do on this Crohn's Disease that we had really never even heard of until a few weeks ago.
Sadly, you're right; no one wants to talk about digestive diseases or we would have already had a clue about this disease before we got blindsided... talking about boob cancer is more en vogue!
I've already found a lot of useful links in your posts to get us started. Thank you very much.
It's amazing how with so many suffering from serious digestive issues like Crohn's (and ulcerative colitis, IBS, etc.), we still don't talk about it... Any other topic might appear on the evening news, but we just don't talk about "poo" or anything related... Congrats on starting to break that cycle!
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