Saturday, December 23, 2006
Thursday, December 21, 2006
Monday, December 18, 2006
It was a me/them kind of thing. Yeah. I know. I am sorry.
Anyhow, have a bag of clothes, toilet paper, wet wipes and hand sanitizer in your vehicle and have one at work. Take my advice. Do it now. Also, when packing for a trip-pack an extra nightgown. (and extra pants too, obviously)
Thursday, December 14, 2006
Gone potty? I don't know. I do know that this bathroom is opening in London, near or in some shopping center. 10 pounds a go. I am a little alarmed that this was opened in response to a lack of public bathrooms (only 400 in London, which is not a small town) and uh, I have to at least go through London to see my kids in Feb. I better put tummy trouble toilet money in my trip budget I guess. sigh.
Monday, November 20, 2006
There are some that I have my doubts about being good for me...like peanut butter and cream cheese. (both manageably ok in just smear on bread or a dab or so elsewhere), lettuce-a leaf on a sandwich ok-more than that not good.
Then there are other foods that should be on the list but I keep thinking I can do in small amounts or maybe that wasn't a problem caused by the food but by the infection I had or some such. These foods, seem innocuous, very unproblematic and for goodness sake, non-replaceable diet components. (though spinach is hard...especially for a mostly vegetarian-next time you go out-look for a vegetarian-friendly dish without it-primary reason I eat more meat than I did 5 years ago)
The primary problem seems to be tomato-involved. 2 tomato slices on a sandwich-again ok, mostly. Puree those tomato slices and mix them with a nice friendly carb like say- noodles or pizza crust-arg. Not good.
My realization about this has been slow coming. (probably precisely because I eat a good number of tomato slices in a week-ok well maybe 5)
I have noticed the tomato sauce-bleack tummy effect before. I have put off pizza. I have even used this as an excuse not to eat "my specialty." (not that my specialty is anywhere near the top 10 list of foods, but the rest of the family seems to rank it highly) No biggy. I have never been a tomato sauce fan, but now I have a problem.
You see, once upon a time, there was a pizza place I loved. It closed when I was no older than 10. I burned my mouth on their pizza. I loved their pizza. Then other places nearby made pizza with similar crust, foldy, slippy, bubbly yummy crust. In fact, I thought this was how all pizza crust was created with the exception of the slightly odd and more expensive "deep dish" crust. I grew up with the bubbly, foldy crust.
Then I grew up and got married and moved away from home, not far at first so I didn't realize I was giving up good crust for good. Then we moved to the upper midwest where pizza crust in non-chain places was some sort of crackery thing. Hated it. Really hated it. Searched vainly off and on for good pizza but ok, it was the midwest. Things could get better. Then we moved to the west coast. The pacific northwest. Interesting pizzas, my first regular visits to 'gourmet' pizzas. I learned to love white pizzas of all sorts. We moved here. On our pre-move trip, we happened upon a great place, pizza nirvana. (with fab cannolis too) I think that decided the move for me. It closed a month after we got here. (with all the gossip that happens when busy, popular, really good Italian places vanish)
So, tonight we ordered pizza for the first time in months. Domino's special. I had seen the ad on the internet. Brooklyn Pizza. Ok, so it is Dominos but the ad looked promising. The pizza delivered (and was delivered) and it was wonderful (ok, other than the sauce, the toppings and the cheese, which retained the Domino's taste which I don't object to really-because well Domino's has often been as close as I can get to my version of perfect pizza in my adult life.) I was in love. I was going to budget for more pizza in our life without hurting our pizza restaurant working boy's feelings and without feeling guilty for supporting those Domino's people who have some views I don't like to pay for.
But, then.....sigh...the bathroom. Pizza-definitely on that list because I have actually done ok this week (well, bathroom-wise that way) GRRRRRRRRRRR. Finally, I can get decent crust for however many weeks until Domino's decides it is a bust and well, it isn't really worth the bathroom trips. Crohn's rots.
Sunday, November 19, 2006
Thursday, November 16, 2006
Granted I can find something of interest in any conference but some of these sessions sound particularly great.
- Progressing towards gracious living
- The Happy Toilet: By Design, Not Chance
- Building Dignity, Not Toilets
- Toileting at Ease, Maintaining a Breeze
- And MORE!
"Discover effective hygiene solutions, as well as gain insights into the latest toilet-related trends, technologies, products and services from leading brands names."Pretty cool stuff!
Tuesday, November 14, 2006
Monday, November 13, 2006
Friday, November 10, 2006
Thursday, November 09, 2006
Uh no, we can not do 30 days in a row of cortenemas, even if I loved them, which I don't. The insurance will pay for 5 and that will still cost me 40 bucks. What are our other options?
Of course, I don't know this until I show up at the pharmacy and they say "well the doctor wrote for 30 but first we need to special order them, second your insurance company will only let us dispense 5." "Ok, well do that and I will call the doctor" (which of course means the switchboard with press 52 followed by the # sign if you haven't passed out going through our options by this point and you still have something you want to say to our doctors)
Prescription costs are a problem, a big problem. They are one that really need to be addressed when the meds are prescribed. No one should have to think well, yeah, that script would help a lot and probably will save me much in the long run but I can buck up this month because we don't have the 40, 120, 260 bucks to pay for it this month.
If you don't remind your doctor this may be an issue...he/she may not have the foresight to mention alternatives. They get the nice samples and the literature and the newest drug may be the best option as far as meds, but it won't do any good if you can't afford it or can't sustain the blow to your budget. What has been your experience with doctors bringing up the cost of scripts?
Of course, telling your doctor, hey, wait a minute, I am not sure I can afford this, is hard. You want to get better. Obviously the doctor thinks that is how you will get better. You also have to deal with your shame over NOT having a life that allows for such expenses. Meds shouldn't be a luxury. Health care shouldn't be...but it is...even if you have insurance, even if you are not "in poverty." People make the decision whether to pay for electricity and their child's field trip as well as the presents for the 3 birthday parties their child got invited to this month or pay for their medications every day in this country. These are people with steady jobs, a car to drive and "everything" they need...except the $80.00 to pay for another prescription every month.
Friday, November 03, 2006
Went to the dentist, yep, you still need them pulled...here is the oral surgeon because, well these aren't easy ones and see that there...that is where the root is wrapped around your sinus. Very dangerous.
They felt some better after that weekend, so I stalled. But not better enough I could dismiss them entirely, so I went and had the pre visit-woo hoo 1600 bucks to pull them. (in addition to the 6 k in regular dental work that needs to be done--well regular in the way that a regular dentist does it)
Uhhh let me figure out my calendar. Figured it out, made a nice appt for mid november. Well, then things went bad. REALLY, REALLY, mind-numbingly run a fever while on immunosuppressants bad. (This is really bad, if I spike a temp after years on imuran...not good)
Called the dentist, they called in antibiotics, come in right away. (in dentist terms, the next day)
Had them pulled yesterday. Mouth hurts, bled forever, still bleeding a little bit but all and all MUCH better than say TUESDAY NIGHT when I was pretty sure that it was much worse than any crohns pain ever. Really it was and leftover surgery pain meds, clove oil, ambesol, vanilla extract and everything else that I could think of or the internet thought of to cure dental pain helped. AT ALL.
Missed two days of work (yesterday and today) and a couple hours wednesday, officially overdrawing my sick leave--again. Damn it. I am doing everything I can to save vacation time so I can spend it with my kids before they go off for the spring (and so I can go see them in February)
In any case, years of yucky tummy, coca-cola and sucking on mints...combined with a previous really bad dentist and lack of money...bad for teeth. But, years of Crohns-they didn't have to give me a lot of info as to what was a soft cold food or a soft warm food.
Tuesday, October 17, 2006
Wednesday, September 27, 2006
On the plus side, the bathrooms at work upgraded the toilet paper and paper towels offered. The new TP dispenser is causing consternation among several women in our dept. (it rolls manically and by mid-day the tp is gone and we are left with a roll sitting on top of the dispenser.) No. I am not using all four rolls and covering it up with the new tp dispenser problem issue.
Tuesday, September 19, 2006
My office plant was all wilted over and half dead. Hopefully watering today will bring it back.
Busier than well something wretchedly busy today, catching up, looking on the ball. etc.
Friday, September 15, 2006
Other news: follow up with the surgeon...well, he got called back into emergency surgery so he didn't see me. Nurse looked briefly at the incisions, said what I told her walking back: they look good, really good considering. She was horrified by my arm and the bruises there. Good thing she didn't see them right after the last hospitalization. I have to go back in 1-2 weeks so he can sign off on me. ARG. Call if my fever goes over 101. (of course, if my fever goes that high, they will probably get a call from the ER, since I am on those nice immune suppressing drugs that keep fevers from happening)
Thursday, September 14, 2006
Update: Instant breakfast went ok yesterday and I think vitamins sprayed on and artificial as they are, was a good thing. May try again today.
White rice with soy sauce went so-so, but at least made it to the morning before bathroom marathon.
ONE dorito with cheese (known as cheese n chips at this house) today-not so good. Immediately not so good-pokey in my gut owieness-which rots.
Incisions look good. Bruising is fading. Left hand no longer looks like I am trying out for the marshmallow man job or some other swollen fisted hand model.
Having trouble with really cold feet and sometimes cold hands as well as probably a bit of fever. Shhhhhh.
Tuesday, September 12, 2006
Egg drop soup with crispy noodles and a fortune cookie last night for dinner had me spend the next four hours in the bathroom or desperately running for it while trying not to fall on my face. I may never eat anything other than too much flavor jello again.
Bruises are healing.
Mouth tastes like crud despite tons of brushing because...well...I am not eating. sigh.
Monday, September 11, 2006
Pain control was a big issue as shaking everything up down there made the crohn's unhappy as well as all the jiggled parts screaming at everyone that they didn't deserve that sort of invasion, not to mention the parts that got sliced and diced. Oddly enough, you can't go home if you pass out from pain.
Then my blood pressure dropped way low. So, then I had to stay until it stabilized into something more normal but still lower than normal.
The mystery bump is still a mystery. G.I. Doc wouldn't say without pathology report coming back, which will be mid-week some time. So, for right now, it is a "cecal mass" still.
I haven't eaten yet really. Jello, broth, a graham cracker that made me most unhappy and a roll that mostly came up almost immediately. My hands and feet are swollen. My left hand is very swollen but looking better. The i.v. infiltrated. I told them to do something about it when it started to hurt, but they flushed it and claimed it was fine. Two hours later when it was all swollen and gross they acted like I had not ever mentioned this to them. Arg. It really just looks awful, not hurt, though typing is making it a bit owie in a stiff sort of way. Lovely bruises on my arms from failed iv attempts.
Biggest annoyance (other than never imagining this would hurt like the dickens) has been having trouble peeing. It is better now but at first, getting the muscles to work right to pee was not happening at all.
Biggest hospital annoyance: LOUD people. My roommates had loud visitors. The hallways were full of loud visitors. I was massively annoyed by the 12 or so yo boy hanging out in the hall when they wanted to transfer me from the gurney to the room. Uh...I know my butt is hanging out and I don't really want to flash that kid. He needs to go into a room or proceed quickly to a non patient part of the hospital.
Another annoyance: nurse arguing with us about my daily meds because they weren't on the order. I definitely need the imuran or I will be back here with more serious issues than this really soon. That nurse also had a hard time understanding what I was saying, a propensity for not answering questions about meds (sorry but I am going to ask what you are giving me and why) and 3 days into this fun still thought my partner was my mother.
What was interesting about the one roommate with the loud visitors was that she complained that she wasn't in a private room because I had to go to her side of the room to use the bathroom and the toilet flushing was loud.
The hospital kitchen is being remodeled so the meals seem to have taken a turn for the worse for visitors as well as patients. It was just as well that I couldn't eat because the boiled cauliflower and fried, mayonaise and gravy doused items that appeared on people's trays made my powdered broth look inviting. I don't know how they expect people to make healthy dietary choices when they can't offer them on a hospital tray.
Good things: nurse in surgery recovery was very good even though she had this thing for kissing my forehead. TLC in the hospital room. (even though I never stayed awake for a whole show and frequently had no idea at all about it) Finding out that the OR prep nurse had a colostomy and used to like ginger ale but gags when she sees it in the grocery store now too.
Below is the picture of the lap incisions. There are three. You can't actually see the one in my belly button. The small red line toward the middle at the top is the first. The third is the red line in the middle of the brownish (betadine) area at the bottom. They each were covered by a band-aid, with very little blood. (They traced the outline of the blood on the bandaid so they could tell if they were bleeding, and they definitely didn't bleed much.) The bottom bruise is pretty nasty but the incisions seem to be healing well.
Wednesday, September 06, 2006
and possible cut.
The red x is vague and now that I am looking at it probably on the wrong side of where the appendix is shown. I had my appendix out right before my son turned 1 and so that isn't there...unless the mystery bump is actually crohns inflamed appendectomy leftovers. (could be) Red line is also approximately where they will lop off intestine if they can't just lasso the mystery bump with the colonoscopy. I wish I knew where the doctor's funny little sketch was, I could scan that in.
And...just in case you weren't sure what the cecum did...
The cecum, the first part of the large intestine, is a sac with a closed end. It occupies the right iliac fossa, the hollow of the inner side of the ilium (the upper part of the hipbone). The cecum, also spelled caecum, is a pouch or large tubelike structure in the lower abdominal cavity that receives undigested food material from the small intestine and is considered the first region of the large intestine. It is separated from the ileum (the final portion of the small intestine) by the ileocecal valve (also called Bauhin's valve), which limits the rate of food passage into the cecum and may help prevent material from returning to the small intestine.
In humans, the cecum's main functions are to absorb fluids and salts that remain after completion of intestinal digestion and absorption and to mix its contents with a lubricating substance, mucus. The cecum's internal wall is composed of a thick mucous membrane through which water and salts are absorbed. Beneath this lining is a deep layer of muscle tissue that produces churning and kneading motions.
The structure and function of the cecum varies in other animals. Vertebrates such as rabbits and horses, which live on a diet composed only of plant life, have a larger cecum that is an important organ of absorption and contains bacteria that help digest cellulose. Animals that eat only meat have a reduced or absent cecum.
What Your Bathroom Habits Say About You
You are a giving soul. Way too giving in fact. You often get stuck doing the dirty work that no one else will do.
Your idea of fashion is jeans and a t-shirt. Clean, if you're lucky.
You have the perfect blend of confidence and class. You're proud of who you are - but you don't broadcast it.
In relationships, you tend to be very romantic and demanding. You'll treat your partner like gold, but you expect a lot in return.
Tuesday, September 05, 2006
The doctor or actually the "scheduler" at your g.i. doc will probably give you a long list of do and do n't do instructions when you get your marching (to the bathroom) orders. These involve things like drinking lots of water, not eating red foods and not taking aspirin in the days leading up to your prep. Check your own instructions for your particular doctor's rules.
What they don't tell you to do is this: clean your bathroom. This may seem counterproductive, after all, you may get it a bit messy during prep. (especially if you vomit, some people do) However, cleaning the bathroom, the night before prep, is a very, very important step. You will spend a lot of time in there. You will feel wretched. When you feel wretched, bathroom crud will annoy. Important details: sit on the toilet and look around. Anything you actually see from the toilet should be wiped down or washed. This includes the wall, light switch, toilet paper roller thing, grout lines, door, etc. Nothing like focussing on odd dirt specks while hoping your guts settle down a bit. You will not feel like wiping them while in prep. You should do this important step yourself, do not foist it on some unsuspecting family member, friend, or cleaning lady. You do not want to growl about their housecleaning during prep or during those nice hours after anesthesia when you are not permitted to sign important documents. It isn't nice.
You may also wish to stock magazines for the bathroom at this time. Food magazines are not a good idea. Vegetarian Times=BAD colonoscopy/bowel surgery prep reading. Books likewise=bad colonoscopy prep reading, particularly if they are of the literary type or the sort you have to follow. I have heard that the Uncle John's Readers are good for colonoscopy prep, but have not tried this method. There are also some intriguing toilet seat shaped books at Barnes and Noble that I look at every so often that might be suited for prep. Magazines really do seem to work well for me. Reader's Digest, Entertainment, other sorts of light, non-food reading.
The up side to all of this is: prep is the worst part. Cleaning the bathroom means you will have a clean bathroom and a productive way to spend your time the night before you start prep!
Look what I am doing tomorrow! Well, actually, the surgeon involved likes to start things off with a bang, so tonight (despite going to the bathroom 7 or 8 times today) I get to take two of the laxative tablets. Then tomorrow...more laxative tablets (generic Dulcolax) and the bottle of wal-phosphate (generic phospho-soda).
Then on Thursday, I get to bathe with special soap. (ok Dial, but they gave me my very own hotel sized bar this morning at pre-admission.) Then, go to the hospital by 8 am, where I will commence waiting for at least 2 hours. (Surgery isn't scheduled until 10). Then, colonoscopy, guided by laparascopy...culminating most likely in a bowel resection followed by a couple days in the hospital followed by two/two and a half weeks at home before returning to work if all goes well...which it may not because of course this is Crohn's and well, Crohn's and resections don't go smoothly a significant part of the time. (as he hastily reassures us that he hopes it will this time)
Sigh. I will be out of sick leave by Monday afternoon. Hopefully, the rest can be worked out with vacation time (not much more of that than sick leave) and a dispensation to work from home. (cross your fingers).
Meeting today with the surgeon was in his office...not in an exam room. That was made up for by a four room extravaganza in admitting at the hospital, complete with bright red hospital bracelet I was worried I would have to wear until surgery. (I don't, they made a second one) The blood draw was the easiest in YEARS. I asked her if she could do the i.v. on Thu. LOL.
Worst part will be missing open house. I never miss school stuff, ever.
Sunday, August 27, 2006
Tuesday, August 08, 2006
Monday, July 31, 2006
Best of all: NO WET TOILET SEATS. None. 700 women using a public bathroom and not leaving pee all over the seats. Really. Picture that. Was everyone afraid Dooce or Grace would come into the stall after them and see their pee on the seat? Was it the lack of anonymity in person and all the blog crushes? I have no idea, but it really made my weekend.
Thanks to everyone for being handwashers too. I would like to think it was everyone who read Denise's Be Prepared post. (goodness knows enough of you did, I was vastly amused by everyone who told her they took her advice and brought a heating pad and were appreciative of that advice.) I think it really is the peer pressure of having groups of women in the bathroom. Or it could have been all the sticky finger food served.
Friday, July 28, 2006
Sunday, July 23, 2006
Just in case you didn't see Josh's comment a couple weeks ago or didn't go to visit, go! Do it. He has got a cool Crohns/Ulcerative Colitis dvd/movie and a TrueGutsForum too! Go wander, whether you have tummy troubles or not.
As for the tummy troubled (and I know I won't be the only one) I am hoping that our room is relatively close to the action. Travel isn't friendly to my gut most of the time.
Monday, July 17, 2006
But surgery is on the plate for probably August. Strange mass in the intestine near the ileum for the ct scan but that could be normal "stuff". We will go with the normal stuff option even though as we all know I did an awful lot of bathroom visits pre-ct scan.
Surgeon and GI seem to be having a difference of opinion on process but I think they are working it out. If not, from the looks of GI today, she will probably ever so nicely take one of her heels to his private parts to encourage him appropriately. Starting to wonder about choosing another fine surgeon in town.
Oh, and back on protonix and lab work. woo hoo. My favorites.
Friday, July 14, 2006
Nurse called and said things looked ok, they would see me Monday and work on scheduling "things" with the surgeon. Sigh. Ack. (particularly since guy tech threw the words partial colectomy into his chatter today which sounds much more yucky than snagging the mystery bump.) Why couldn't they just say woo hoo mystery bump has vanished.
BTW-official name of mystery bump has been upgraded to "cecal lump" but I think I will call it Bob.
Wednesday, July 12, 2006
Saturday, July 08, 2006
Ha! Well, what they don't mention is that aspirin and ibuprofen rank as no-nos of high order for the tummy troubled. Hmmm maybe I should say "Bring on the Advil! Less pain! More Blood! No colon cancer!"
Thursday, July 06, 2006
My gut was not happy before news of the call, now it is having a full scale protest.
*Title comes from my word of the day along with Squee!
Wednesday, July 05, 2006
Tummy troubles have seemed miserable lately. Maybe just this lingering for a month infection makes it seem that way? Ob la di ob la da
By the way: if you have Crohn's, do not run an infection for a month or so, (oh good grief, I have crohn's AND am on immunosuppressants, who am I kidding? I always have an infection.) watch it progress a bit, then spend a week or so, knocking yourself out, because well, it is your only chance and you wouldn't miss it for the world, then be surprised when you fall miserably, grossly ill afterwards. (especially combined with menstruation) (still would do it all over again, no question)
Thursday, June 29, 2006
Can your kitchen pass the food safety test?
Wednesday, May 17, 2006
1. Being asked if I had been on a poultry farm or handled live birds recently. (bird flu questions)
2. Had I been out of the country in the past 10 days
3. New colonoscopy/endoscopy center at North Florida-new large waiting room and admission area, new prep waiting rooms that are rooms with bathrooms/tvs/etc.
4. Truly awful wallpaper borders and art, though the art and borders are a nice touch
5. Being told I am tiny all over. Hmmm...
6. The sedation wore off very quick, much quicker than at my usual endo/colonoscopy haunt.
7. The doctor blowing me up like a balloon and leaving me to deflate on my own. Geez, she doesn't normally do that or if she does she deflates me.
8. The doctor talking to my partner while ostensibly telling me all her thoughts
9. The doctor getting mushy with my partner.
10. The complete humorlessness of the staff in the colonoscopy room itself. Usually folks in that field tend to be quick with humor.
Mystery bump no less mysterious and growing. Doc also wants to up the imuran.
Tuesday, May 16, 2006
Truly bizarre line in a prep article.
The title of this article made me giggle. What was I doing there? Well, ummm I HATE PREP and was hoping that searching for colonoscopy prep would spill some unknown secret to less horrid prep. Nope.
Then, I saw the title of this article, had to click. Certainly, with a great title like that, they would have a suggestion for clear liquids that I had not considered. (like I feel like eating ANYTHING with this headache, nausea and camping out in the bathroom with a bottle of gingerale and phospho soda waiting for the final "omg I hate this" drink). Nope, no dice there either, but a great title and info on the clear liquid diet if you haven't got a handle on it.
I am glad this is early in the morning though. I feel almost as death-like as I did with my first prep and wandering the hospital much later in the day feeling like this might be not such a good thing.
Monday, May 15, 2006
Tuesday, May 09, 2006
3 minutes and it burns the waste? Yep, just what I want to do, sit on a home incinerator. How about you?
Friday, May 05, 2006
This is a cool blog for all of us who spend a lot of the time in the bathroom and even pretty cool for those who spend an average or very little amount of time in the bathroom.
She even alerted me to the extra special self cleaning toilet which led me to the scotchguarded SINK! Very cool.
Now go visit!
Tuesday, May 02, 2006
"The vision ... is to establish a clean toilet culture,"
Wow, can we have any more toilet news? Toilet summit leader sounds like a job for someone with tummy troubles doesn't it?
Fun Germ Facts for Your Day:
- Germs do not stick where people believe they will.
- Doorknobs are usually on the low side as far as bacteria because they are not usually moist. "Never fear a doorknob."
- The average desk harbors 400 times more bacteria than the average toilet seat
- Short-cycle, cold-water laundry washing leaves viruses and bacteria largely intact.
- There is a 10th of a gram of feces in the average pair of underwear, which then swishes around to get on all the clothes washed with them.
- Viruses such as hepatitis A, rotavirus and bacteria such as Salmonella -- all of which cause stomach upsets and diarrhea -- can easily survive the average 28-minute drying cycle
Wash your hands before and after laundry and meal prep. Touch the doorknob. Sit on the toilet seat. And for goodness sake, clean your desk!
Tuesday, April 25, 2006
Wednesday, April 19, 2006
I am scheduled to have another colonoscopy on May 17. This time at the hospital so I imagine they are going to lasso the mystery bump at that time. I am not thrilled about it but maybe once that is done, doc will chill a bit.
Thursday, April 06, 2006
It seems that the immune system uses a protein called TNR to fight disease, in part by causing normal GI function to stop, all well and good until it goes a bit overboard.
Thalidomide blocks TNR, however, that isn't really a great drug for a number of reasons, primarily really bad birth defects related to its use in the 1950s.
Monday, April 03, 2006
So, of course, at least I, would like for better handwashing habits to catch on like wildfire. So would the folks at Iowa State University Extension. They currently have a survey about which handwashing billboard you most would like to see, so go wash your hands and VOTE for your favorite.
Wednesday, March 29, 2006
Interesting idea for a reality tv show, though one has to growl about the fact that presumably these folks are going to be fixed with these alternative treatments...thus leading the "caring", "concerned" folks to have just one more thing to point to when they say "I saw on tv where all that someone with _______ had to do was stop _________ (or take up yoga, go to a ___________) and they were cured!" It might be true in some cases, but in more cases I think it tends to make the person feel like they are sick because it is their own fault.
Thursday, March 23, 2006
Ok, not tummy trouble related, but bathroom related.
Monday, February 27, 2006
Stool color has changed. In fact, I am hitting the rainbow this week. Yeah, the black is not so good. Especially considering I am a vegetarian who couldn't eat large amounts of spinach, beets and wouldn't eat licorice and don't take an iron supplement that does that.
Still unhappy gut, not assisted by the potluck today at work. An evening of bathroom fun seems to have quieted for now though. Cross your fingers, because I am once again out of sick leave and I want to save vacation for when my kids are home.
The solution: Viagra. Yes, the little blue pill. Bob Dole could have something besides left-handedness in common with ME! Ok, so I am not signing up yet. Little study, but fun to read the side effects of Viagra and wonder about what an extended erection reaction might be like.
Saturday, February 25, 2006
Wednesday, February 22, 2006
Sunday, February 19, 2006
I am not sure if it is a cold, busy days or something tummy related. The only notable tummy stuff of late has been horrid cramping at 3:30-4 every afternoon for the past few days. I tough it out and it goes away.
Thursday, February 09, 2006
Administrators at PS/MS 95 last month began enforcing a bathroom schedule for first through third grades that provides a daily 15- minute window for kids in each class to do their business."
UGH! Hope they don't have any kids with Crohn's or other tummy troubles.
Wednesday, February 08, 2006
Technorati Tags: friedmushrooms, falafal, sesameseeds, crohns, crohn's, colitis, badfoods
Tuesday, February 07, 2006
Or maybe I should blog about how colds are evil things and make my already yucky tummy magnify yuckiness.
Or maybe about my craving for peanut sesame ramen noodles which I don't want enough to get over my sniggling suspicion that pantry pests are afoot...not roaches but those little grain bugs and such that you only really see in the Gardens Alive catalog. In any case, I know that I have low tolerance for these showing up when I toss noodles into boiling water and have particularly bad reactions to them when I am sick. My mother suggested ramen to me when I was sick one time as a teen. As I cooked them, I saw the dead and half dead wriggly larva or whatever and didn't eat ramen for almost 15 years. (including during the poverty stricken college years, but not including the an infant and a toddler and no money but the then husband was forever away on a business trip complaining about the quality of food at conferences, the scheduling of meals, and feeling bloated after too much lobster days...where I ate many bowls of ramen.)
Technorati Tags: mcdonalds, hamburger, sesame, peanut, ramen, bugs, pantrypests, cold,
Monday, February 06, 2006
Friday, February 03, 2006
Sunday, January 29, 2006
Friday, January 27, 2006
'If a president had it, and he was disabled but still running the country, maybe people would lighten up on disabled people a little bit,' "
Geez, well this is where I am often with Crohn's is it a need to know thing or do I want to be amazing just because I manage to get out of bed in the morning? Neither.
Wednesday, January 25, 2006
Also, I have been having bouncy back and forth migraines the past couple of days and the accompanying queasy feelings suck almost as bad as the headache.
Tuesday, January 24, 2006
Frightening idea to be on a train trip for 24 hours or more with nearly impossible to reach toilet trips. I can't imagine doing such a thing with Crohn's.
Technorati Tags: diapers, crohns, depends, tummytroubles, China
Sunday, January 22, 2006
I want to go see Potty Palooza! Way too cool! Why hasn't this been at any festival or event I have attended?????????? Surely all us tummy troubled folk would like to see this at all of them!
Technorati Tags: pottypalooza, tummytroubles, crohns, IBD, toilets, Charmin
Friday, January 20, 2006
Sunday, January 15, 2006
Is it because I started taking my Forvia vitamins again? Is it just chance? I would like to blame it just on bad food choices butttttttt it really started before that. ARG! Oncoming menstruation? Maybe, but last month I did ok pre-menstruation. (granted that was an anomaly) Stress? Well, maybe, but that can be argued too. Endoscopy? Well, they didn't exactly go "down there." Lingering cold for a month? Maybe. Infected teeth. Maybe.
BLEAH! BLEAH! BLEAH! In any case, I want some clear cut causation and cure. If x happens, then y results. Chronic disease SUCKS.
Technorati Tags: Crohns, crohn's, colitis, tummy_troubles, IBD, menstruation, forvia, endoscopy, diarrhea, chronic
Thursday, January 12, 2006
Anyhow, the endoscopy went well! No problem prep, no food after midnight, clear liquids until 4 hours before but really I didn't have anything but clear liquids for like 15 hours before. Sore throat afterwards complicated by my cold. (see below)
The stomach showed extensive edema but nothing alarming so no changes see her in two months! YAY! They even sent home souvenier pictures. I will scan for your enlightenment at some point. The kids have certainly enjoyed them!
Christmas and New Years went well. I even managed to snag some greens without paying the Crohn's price. I have had a horrible cold that started 12/23 and has not gone away. I was just sitting here wondering if my ear might explode. I suppose I should call my regular doc but geez.
Technorati Tags: crohns, crohn's, IBD, endoscopy
Tuesday, January 03, 2006
Of course, my question without looking here is that seeing as how the small bowel is not that readily visualized, could it not be that people with Crohn's are more likely to get it noticed just because of a higher freq. of imaging of that area?